Thank you for your support
MPS6CESS: Donated for our conference to have captioning services for our hard-of-hearing and deaf families.
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Mission statement: The MPS6CESS Foundation is a 501(C)(3) non-profit, all-volunteer organization dedicated to promoting awareness and support for families living with Mucopolysaccharidosis VI, or MPS 6. Our mission is to provide medical and basic living necessities for families with children living with MPS6.
MPS6 also known as Maroteaux-Lamy syndrome, is one of the mucopolysaccharide disorders. There is no cure for the disease but the symptoms can be managed. Children with the disease are missing an enzyme that breaks down dermatan sulfate which remain stored in cells in the body causing progressive damage. Symptoms are short stature, recurrent ear infections, deformed cranial features and extremities.
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BioMarin Pharmaceutical Inc: Donated funds for our conference
With seven products on the market and a fully-integrated multinational organization in place, BioMarin is providing innovative therapeutics to patients with serious unmet medical needs.
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Website: https://www.biomarin.com/
National MPS Society: Donated support and funds for our conference
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Mission statement:
The National MPS Society exists to cure, support and advocate for MPS and ML.
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Website: https://mpssociety.org/